VHL Alliance

Our Story

The VHL Alliance is dedicated to enhancing the quality of life for individuals impacted by Von Hippel-Lindau (VHL) disease. Founded to support patients, families, and caregivers, the organization focuses on community building, education, treatment options, and advancing medical research.

Impact

Since the identification of the VHL gene in 1993, the VHL Alliance has made significant strides in research and patient support, leading to advancements in treatment options and the establishment of clinical care centers.

Why Donate?

Your contributions to the VHL Alliance support critical research and patient care initiatives that directly impact the lives of those affected by VHL.

Get Involved

Join the fight against VHL disease by donating today. Your support helps fund educational resources, clinical trials, and community support programs, ensuring that patients and families receive the assistance they need.