Vanishing White Matter Foundation

The Story of the Vanishing White Matter Foundation

In the fall of 2007, the Vanishing White Matter Foundation was born from a family's urgent need for answers. When Annabelle, a lively fourth grader, began experiencing troubling symptoms, her parents sought medical help. An MRI revealed significant white-matter issues in her brain, leading to a diagnosis of a rare type of Leukodystrophy. This pivotal moment ignited a mission to support research and connect families affected by this devastating condition.

Impact of Your Support

Every donation directly funds critical research into VWM Leukodystrophy, ensuring that 100% of contributions are dedicated to this cause.

Why Donate?

Your generous contributions enable the foundation to continue its vital research efforts. With no paid employees or administrative costs, every dollar goes towards finding answers and solutions for families affected by VWM. Many employers offer matching contributions, amplifying the impact of your gift.

Join the Fight Against VWM Leukodystrophy

Support the Vanishing White Matter Foundation today by donating cryptocurrency or cash. Your contribution can make a significant difference in the lives of those affected by this rare condition. Together, we can bring hope and healing to families in need.