Usher Syndrome Society

Our Story

Founded in 2012 by Nancy Corderman, the Usher Syndrome Society was born from a personal journey. After two of her children were diagnosed with Usher syndrome, a rare condition causing combined deafness and blindness, the organization was established to raise awareness and accelerate research efforts. By sharing personal stories, the Society aims to shed light on this often-overlooked condition.

Impact

With a commitment of over $3.5 million towards research, the Usher Syndrome Society is dedicated to finding effective treatments and ultimately a cure for Usher syndrome.

Why Donate?

Your generous donation directly supports critical research and initiatives aimed at improving the lives of those affected by Usher syndrome. As a registered 501(c)(3) organization, contributions are secure and tax-exempt.

Get Involved

Join the fight against Usher syndrome! Your support can make a significant difference in the lives of individuals and families affected by this condition. Donate cryptocurrency or cash today to help fund vital research and awareness initiatives.