The Joshua Frase Foundation

About The Joshua Frase Foundation

The Joshua Frase Foundation is dedicated to supporting research for myotubular myopathy, a rare genetic disorder impacting muscle development and function. Based in the United States, the foundation works tirelessly to raise awareness and provide essential resources for families affected by this condition.

Impact of the Foundation

Through its initiatives, the foundation has established an international patient registry and funded significant research projects, contributing to advancements in understanding and treating myotubular myopathy.

Why Donate?

Your donation to The Joshua Frase Foundation directly supports critical research efforts aimed at finding a cure for myotubular myopathy, while also providing vital resources for affected families and raising awareness about this rare disorder.

Get Involved Today!

Join the fight against myotubular myopathy by donating cryptocurrency or cash. Your contribution can make a significant difference in the lives of those affected and help pave the way for groundbreaking research and treatments.