Desmoid Tumor Research Foundation

About The Desmoid Tumor Research Foundation

Founded in 2005 by Jeanne Whiting and Marlene Portnoy, The Desmoid Tumor Research Foundation (DTRF) is dedicated to facilitating and funding research for desmoid tumors. Collaborating with researchers and clinicians worldwide, DTRF aims to improve patient lives through education, awareness, and support.

Impact of DTRF

Over nearly 15 years, DTRF has played a crucial role in the approval of OGSIVEO (nirogacestat), the first FDA-approved therapy for desmoid tumors, leading to significant advancements in treatment options.

Why Donate?

Your donation to DTRF directly funds vital research for better treatment options and a cure for desmoid tumor patients. Every contribution, regardless of size, supports the mission and the community.

Join the Fight Against Desmoid Tumors

Support the Desmoid Tumor Research Foundation by donating cryptocurrency or cash today. Together, we can accelerate research and improve the lives of those affected by this rare disease.