The Children's Medical Research Foundation, Inc.

Our Story

In 1995, Kirby Wilson was diagnosed with Sanfilippo “B” Syndrome, a devastating genetic disorder. Despite her passing in 2019, her legacy lives on through The Children's Medical Research Foundation, Inc., founded by her parents, Sue and Brad Wilson. This foundation is committed to funding vital research aimed at finding a cure for Sanfilippo Syndrome and other neuro-genetic disorders. To date, over $4.4 million has been granted to ten research groups, with more than 95% of all receipts directed towards research funding.

Impact

The Children's Medical Research Foundation has made significant strides in the fight against Sanfilippo Syndrome, funding critical research initiatives that bring hope to affected families.

Why Donate?

Your generous contribution will directly support groundbreaking research and clinical trials for Sanfilippo Syndrome. As a public 501(c)(3) charitable organization, all donations are tax-deductible, ensuring that your support goes a long way in the quest for a cure.

Join the Fight

Help make a difference today! Your donation, whether in cryptocurrency or cash, can help fund essential research and bring hope to families affected by Sanfilippo Syndrome. Together, we can honor Kirby's legacy and strive for a cure.