Rare Village
EIN: 83-4699994 · McKinney, TX
Our Story
Founded by two dedicated mothers of children with rare diseases, the Rare Village Foundation is committed to transforming the lives of families navigating the challenges of rare pediatric neurodegenerative diseases. Our sons, Will and Joseph, both face daunting battles with Surf1 syndrome and Batten disease, respectively. Their resilience and spirit inspire our mission to create a supportive community and advocate for innovative gene therapy treatments.
Impact
Together, we empower families to create cures for rare diseases, fostering hope and collaboration.
Why Donate?
Your contribution, whether in cryptocurrency or cash, plays a vital role in supporting rare disease families. Community support is crucial for these families, and every donation helps us make a difference.
Join the Movement
Help change the lives of children with rare diseases today! Your donation can provide essential resources and support for families in need. Together, we can create a brighter future for our children.
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