Pachyonychia Congenita Project
EIN: 68-0567493 · Holladay, UT
About Pachyonychia Congenita Project
The Pachyonychia Congenita Project is a dedicated charity focused on providing international support for individuals suffering from Pachyonychia Congenita (PC), a rare and painful genetic skin disorder. This organization collaborates with patients and medical professionals to discover effective treatments and ultimately a cure for PC.
Impact of the Organization
With the establishment of the International Pachyonychia Congenita Research Registry, the only one of its kind globally, the organization offers personalized support, free diagnostic genetic testing, and updates on clinical trials for patients across more than 53 countries.
Why Donate?
All initiatives are funded through community donations, which are vital for supporting research, patient advocacy, and the development of treatments for Pachyonychia Congenita.
Make a Difference Today!
Your contribution can help alleviate the suffering of those with Pachyonychia Congenita. Donate cryptocurrency or cash to support groundbreaking research and patient support initiatives. Together, a future without pain is possible!
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