Our Story
The Neurofibromatosis Support Group of West Michigan was founded in January 1985 by Sue DeGroot, MSW, a dedicated social worker at Spectrum Health in Grand Rapids. Initially, the group began with 45 attendees, many of whom were misinformed about neurofibromatosis (NF). In 1986, the support group transitioned to a member-led organization, continuing to meet regularly for educational and social events.