Neurofibromatosis Northeast

Our Story

Neurofibromatosis Northeast was founded by Karen and Bert Peluso after their daughter was diagnosed with neurofibromatosis (NF). This grassroots effort has evolved into a vital resource for patients, physicians, and researchers, raising awareness and funds for critical research.

Impact

With over $3 million in research grants and advocacy efforts that have directed more than $600 million towards federally funded NF research, Neurofibromatosis Northeast is making a significant difference in the lives of those affected by NF.

Why Donate?

Your contributions support essential research and advocacy aimed at finding treatments and a cure for neurofibromatosis, while also providing vital resources for patients and families navigating their journey.

Get Involved

Join the fight against neurofibromatosis by donating today! Your support can help change lives and advance research efforts. Whether through cryptocurrency or cash, every contribution counts!