NORD
EIN: 13-3223946 · Danbury, CT
Empowering Lives Affected by Rare Diseases
The National Organization for Rare Disorders (NORD) is dedicated to improving the lives of individuals affected by rare diseases. With over 7,000 rare diseases impacting nearly 30 million Americans, NORD serves as a vital resource for patients, families, and healthcare professionals. Based in the United States, NORD works tirelessly to advocate for policies that support rare disease research, education, and access to treatment.
Our Mission
NORD's mission is to provide hope and support to those affected by rare diseases. By fostering collaboration among patients, healthcare providers, and researchers, NORD aims to accelerate the development of treatments and improve the quality of life for individuals living with these conditions.
Impacting Lives Through Advocacy and Support
Since its inception, NORD has made significant strides in raising awareness about rare diseases and advocating for the needs of patients. Through various initiatives, NORD has:
- Established a Patient Assistance Program: Providing financial assistance to patients in need of critical medications and treatments.
- Launched Educational Resources: Offering comprehensive information on rare diseases to empower patients and families.
- Advocated for Policy Change: Working with lawmakers to ensure that the voices of rare disease patients are heard in legislative discussions.
NORD's commitment to research has also led to partnerships with pharmaceutical companies and research institutions, fostering innovation in the development of new therapies. By supporting NORD, donors contribute to a future where every individual with a rare disease has access to the care and support they need.
Why Your Donation Matters
Donating to NORD, whether through cryptocurrency or cash, directly impacts the lives of those affected by rare diseases. Your contributions help fund essential programs that provide:
- Research Grants: Supporting groundbreaking research that leads to new treatments and cures.
- Patient Advocacy: Ensuring that patients' voices are represented in healthcare policy discussions.
- Community Support: Creating a network of support for patients and families navigating the challenges of rare diseases.
Every donation, no matter the size, plays a crucial role in advancing NORD's mission. By choosing to donate, you are joining a community dedicated to making a difference in the lives of millions.
Join the Fight Against Rare Diseases
Your support can change lives. Donate today to help NORD continue its vital work in advocating for individuals with rare diseases. Together, we can create a brighter future for those in need.
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