Moebius Syndrome Foundation

About the Moebius Syndrome Foundation

Founded in 1994, the Moebius Syndrome Foundation has been a beacon of hope for the Moebius syndrome community for nearly 30 years. This organization hosts conferences that allow individuals with Moebius syndrome and their families to connect, share experiences, and find support. Researchers and medical professionals collaborate to enhance the understanding of Moebius syndrome, making the Foundation the Home for the Moebius Community™.

Impact of Your Support

As of 2021, the Foundation has provided $1.4 million in research funding and hosted 8 Research Symposiums, significantly advancing the knowledge and treatment of Moebius syndrome.

Why Donate?

Your generous gift will directly impact the lives of those affected by Moebius syndrome. The mission is to provide vital information and support, promote awareness, and advocate for scientific research to improve diagnosis and treatment options.

Make a Difference Today

Join the movement to support individuals with Moebius syndrome. Your donation, whether in cryptocurrency or cash, can help fund research, provide scholarships, and create community events that foster connection and understanding. Together, we can make a lasting impact!