Malan Syndrome Foundation

Our Story

The Malan Syndrome Foundation was founded in 2010 by four dedicated mothers who sought to provide resources and improved care for families affected by Malan syndrome, a condition linked to changes in the NFIX gene. Established in New Jersey, this nonprofit organization has grown into a vital support network.

Impact

Through outreach, research, and education, the Foundation aims to enhance the lives of individuals and families impacted by Malan syndrome.

Why Donate?

With over 95% of donations directly supporting research, outreach, and educational conferences, your contribution is crucial. Donations are tax-deductible, and the Foundation maintains minimal operating expenses, ensuring that your support makes a significant difference.

Get Involved

Join the fight against Malan syndrome by donating today! Your support can help fund vital research and provide essential resources for affected families. Whether through cryptocurrency or cash, every contribution counts. Together, we can make a lasting impact!