Lilly and Blair Foundation

Our Story

Founded in 2023, the Lilly and Blair Foundation emerged from a serendipitous meeting between two families facing the same devastating diagnosis for their daughters. This foundation is committed to pushing the boundaries of hope and research, working tirelessly to find a cure or treatment for children impacted by de novo spastic paraplegia (SPG4).

Impact

The Lilly and Blair Foundation is dedicated to improving the lives of children with de novo spastic paraplegia through collaboration with leading scientists and funding promising research. Currently, there is no treatment or cure for this swift and severe neurodegenerative disease.

Why Donate?

Your support can make a significant difference in the lives of children battling this severe disease. 100% of donations will directly fund research for a treatment or cure.

Get Involved

Join the fight against de novo SPG4. Donate cryptocurrency or cash today to support groundbreaking research and bring hope to families in need.