Crowdstake

Katie’s Clinic for Rett Syndrome

EIN: 81-5099894 · Danville, CA

Rett Syndrome Clinical Care
Research
Community Education

Our Story

Katie Nues was born in 2002, a healthy and happy child, but by her first birthday, her parents noticed troubling signs. At 17 months, Katie was diagnosed with Rett Syndrome, a severe neurological disorder that affects motor skills and causes various health challenges. Despite these obstacles, Katie remains a joyful girl, surrounded by a loving family.

In search of specialized care, Katie and her parents traveled to Texas Children’s Hospital, where the idea for Katie’s Clinic for Rett Syndrome was born. Within a year of her diagnosis, the clinic opened its doors in San Francisco, becoming the first of its kind on the West Coast. Thanks to the support of the Rowan Branch and the dedication of the community, the clinic has flourished, serving as a model for similar centers nationwide.

Impact

Katie’s Clinic for Rett Syndrome currently serves over 250 patients, providing essential clinical care, research initiatives, and community education that are not covered by insurance. Every donation ensures that no family is ever turned away.

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