Jansen de Vries Syndrome Foundation

Our Story

The Jansen de Vries Syndrome Foundation is committed to raising awareness and fostering a supportive community for families impacted by Jansen de Vries Syndrome (JdVS). This rare genetic condition affects many, and the foundation strives to connect families and share vital resources.

Impact

Through dedicated fundraising and advocacy, the foundation enhances the lives of individuals with JdVS by supporting research into the PPM1D mutation and facilitating connections among families.

Why Donate?

Your generous donations to the Jansen de Vries Syndrome Foundation directly fund essential research, provide invaluable resources for families, and promote community-building initiatives that uplift those affected by JdVS.

Get Involved

Join the fight against Jansen de Vries Syndrome by donating today! Your contribution, whether in cryptocurrency or cash, can create a lasting impact on the lives of families navigating this rare condition.