HPS Network
EIN: 11-3283268 · Oyster Bay, NY
About HPS Network
The HPS Network, founded in 1992, is dedicated to supporting individuals and families affected by Hermansky-Pudlak syndrome. Based in New York, this nonprofit organization focuses on education, awareness, and research to improve the lives of those impacted by this rare genetic disorder.
Impact of HPS Network
Through annual Family Conferences in New York and Puerto Rico, the HPS Network fosters connections among patients, families, and medical professionals. The organization actively participates in the American Thoracic Society Conference, advocating for patient perspectives in the pulmonology community.
Why Donate?
Donations to the HPS Network are crucial for funding research and operational costs. Your support helps enhance outreach, networking, and research collaborations, ultimately advancing the understanding and treatment of Hermansky-Pudlak syndrome.
Get Involved Today!
Join the fight against Hermansky-Pudlak syndrome by donating cryptocurrency or cash. Your contribution can make a significant difference in the lives of those affected. Together, we can pave the way for better care and innovative research.
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