Crowdstake

Friends of DBA

EIN: 27-4575997 · Strongsville, OH

Funding Research for Diamond Blackfan Anemia
Providing Education and Support for DBA Families

Our Story

Founded in 2007, Friends of DBA emerged from a personal journey of hope and resilience. After their son Trevor was diagnosed with Diamond Blackfan Anemia (DBA) at just 18 months old, Jim and his partner sought to raise awareness and funds for this rare disease affecting infants and children. DBA patients struggle to produce red blood cells, often requiring steroid treatments and blood transfusions. With no cure available, the need for research and support is critical.

Trevor's health challenges began with alarming blood tests revealing a dangerously low red blood cell count. Despite being given a grim prognosis, the family’s determination led them to seek specialized care, ultimately resulting in a diagnosis and effective treatment plan. Today, Trevor continues to thrive, pursuing a career in graphic design while managing his condition.

Impact

Friends of DBA is committed to transforming the lives of those affected by DBA. By funding innovative research projects, the organization aims to uncover the underlying causes of this disorder and develop targeted therapies that can change the future for patients and their families.

Join the Cause

Make a difference today! Your donation, whether in cryptocurrency or cash, can help change the lives of those battling Diamond Blackfan Anemia. Together, we can bring hope and healing to families in need.

Do you represent Friends of DBA? Sign up and claim this page to customize it and gain access to our dashboard. Learn More.