EIN: 82-5300929 · Sands Point, NY
In September 2017, a group of parents from around the world connected through Skype, united by the heartbreaking diagnosis of their children with FOXG1 syndrome. Recognizing the lack of research and understanding of this condition, they founded the FOXG1 Research Foundation. This global organization, supported by a Scientific Advisory Board of leading experts, is dedicated to advancing research on the FOXG1 gene and its implications for neurological disorders.
Since its inception, the FOXG1 Research Foundation has raised over $7 million, funded 11 academic labs, and developed the first genetic therapy compound moving toward human clinical trials. The foundation has also launched a novel Natural History Study platform utilized by over 100 rare disease groups, significantly contributing to the understanding of FOXG1 syndrome.
Your contributions to the FOXG1 Research Foundation support groundbreaking research aimed at finding effective treatments for FOXG1 syndrome and related neurological disorders. Donations help fund essential research projects, provide support for affected families, and raise awareness about this rare disease. Every donation accelerates the journey toward a cure and enhances the lives of those impacted by FOXG1 syndrome.
Join the fight against FOXG1 syndrome by donating cryptocurrency or cash. Your support is vital in driving research and improving lives. Every contribution counts!
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