Finding Hope for FRRS1L

Our Story

Finding Hope for FRRS1L was founded in July 2021 by a dedicated group of parents whose children are affected by the FRRS1L gene disorder. Inspired by a transformative conversation with a gene therapist, the organization aims to foster a community for families, fund vital research for gene therapy treatments, and raise awareness about this rare disorder.

Impact

Since its inception, Finding Hope for FRRS1L has successfully raised over $400,000 to support groundbreaking research and development of gene therapy treatments. Promising lab studies have shown that gene replacement therapy can restore function in FRRS1L mice, igniting hope for similar advancements in affected children.

Why Donate?

Your contributions to Finding Hope for FRRS1L directly fund life-saving research efforts aimed at developing gene therapy treatments for children suffering from this genetic disorder. All donations are tax-deductible and are crucial in advancing our mission.

Get Involved

Join the fight against FRRS1L by donating today! Your support can make a significant difference in the lives of affected families and help pave the way for innovative treatments. Whether through cryptocurrency or cash, every contribution counts!