Families of SMA
EIN: 36-3320440 · Elk Grove Village, IL
About Families of Spinal Muscular Atrophy
Families of Spinal Muscular Atrophy (SMA) is a nonprofit organization committed to improving the lives of families affected by Spinal Muscular Atrophy, a genetic disorder that affects motor neurons and leads to muscle weakness and atrophy. Founded in 1984, this organization has been at the forefront of research, education, and advocacy, providing essential resources and support to families across the United States and beyond.
Our Mission
The mission of Families of SMA is to promote and support research for treatments and a cure for SMA, while also providing families with the necessary resources to navigate the challenges of this condition. With a focus on community, education, and advocacy, Families of SMA strives to empower families and improve the quality of life for those affected by SMA.
Impact of Families of SMA
Over the years, Families of SMA has made significant strides in the fight against SMA. Through funding groundbreaking research, the organization has contributed to the development of innovative therapies that have changed the lives of many individuals living with SMA. The organization has funded over $50 million in research grants, leading to advancements in treatment options and a better understanding of the disease.
Community Support and Resources
Families of SMA provides a wealth of resources for families, including educational materials, support groups, and access to medical professionals who specialize in SMA. The organization hosts annual conferences that bring together families, researchers, and healthcare providers to share knowledge and experiences. These events foster a sense of community and provide families with the tools they need to advocate for their loved ones.
Why Donate to Families of SMA?
Your contributions to Families of SMA can make a profound difference in the lives of families affected by SMA. Donations help fund critical research initiatives, support educational programs, and provide essential resources to families in need. By donating, you are not only supporting the fight against SMA but also helping to create a brighter future for those affected by this condition.
Make an Impact Today
Every donation, whether in cryptocurrency or cash, plays a vital role in advancing research and providing support to families. Your generosity can help bring hope to those affected by SMA and contribute to the development of life-changing treatments.
Call to Action
Join the fight against Spinal Muscular Atrophy today! Donate cryptocurrency or cash to Families of SMA and help make a difference in the lives of families affected by this condition.
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