Crowdstake

Cure Rare Disease

EIN: 82-2473513 · Boston, MA

Duchenne Muscular Dystrophy
Limb-Girdle Muscular Dystrophies
Spinocerebellar Ataxia
ADSSL1 Gene Related Myopathy

Our Story

Cure Rare Disease was founded by Rich Horgan after his brother, Terry, was diagnosed with Duchenne muscular dystrophy. This organization is dedicated to developing life-saving genetic medicines for rare and ultra-rare diseases that are often overlooked by traditional drug development.

Impact

With an investment of $5.8 million into research and development, Cure Rare Disease is poised to impact over 200,000 lives. The organization has made significant strides, including the development of a first-in-human therapeutic and receiving FDA approval for clinical trials.

Why Donate?

Your contributions to Cure Rare Disease support the development of essential therapies for patients with rare diseases. Donations provide hope to families facing dire health challenges, ensuring that no family hears that there is nothing that can be done for their loved ones.

Get Involved

Join the fight against rare diseases by donating cryptocurrency or cash today. Your support can change lives and bring hope to families in need.

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