CdLS Foundation

About the Cornelia de Lange Syndrome Foundation

The Cornelia de Lange Syndrome Foundation, also known as the CdLS Foundation, is a nonprofit organization committed to improving the lives of individuals affected by Cornelia de Lange Syndrome (CdLS). Founded in 1981, the foundation provides vital resources, support, and advocacy for families navigating the challenges associated with this rare genetic disorder. With a mission to enhance the quality of life for those impacted by CdLS, the foundation serves families across the United States and beyond.

Understanding Cornelia de Lange Syndrome

Cornelia de Lange Syndrome is a complex genetic condition characterized by a range of physical, cognitive, and developmental challenges. Individuals with CdLS may experience growth delays, distinctive facial features, and various health issues. The CdLS Foundation plays a crucial role in raising awareness about this condition, providing educational resources, and fostering a supportive community for affected families.

Impact of the CdLS Foundation

Through its dedicated efforts, the CdLS Foundation has made significant strides in supporting individuals and families affected by Cornelia de Lange Syndrome. The foundation offers a wealth of resources, including:

• Family Support: The foundation provides personalized support to families, helping them navigate the complexities of CdLS and connect with others facing similar challenges.
• Educational Resources: Comprehensive materials are available to educate families, healthcare professionals, and the public about CdLS, its symptoms, and management strategies.
• Research Funding: The foundation actively funds research initiatives aimed at better understanding CdLS and improving treatment options for those affected.
• Advocacy: The CdLS Foundation advocates for policies and programs that benefit individuals with CdLS, ensuring their voices are heard in the broader community.

These initiatives have led to improved outcomes for individuals with CdLS, fostering a sense of community and hope among families.

Why Donate to the CdLS Foundation?

Your generous contributions to the Cornelia de Lange Syndrome Foundation can make a profound difference in the lives of individuals and families affected by this condition. Donations help fund essential programs, research, and resources that directly impact the CdLS community. By donating, you are not only supporting the foundation's mission but also helping to raise awareness and promote understanding of Cornelia de Lange Syndrome.

Whether you choose to donate cryptocurrency or cash, your support is invaluable. Every contribution, no matter the size, helps the foundation continue its vital work and reach more families in need.

Join the Movement

Support the Cornelia de Lange Syndrome Foundation today by making a donation. Together, we can create a brighter future for individuals with CdLS and their families.