Connective Tissue Coalition

About the Connective Tissue Coalition

The Connective Tissue Coalition is a dedicated community of professionals and individuals united in raising awareness and advocating for those living with connective tissue syndromes, including Ehlers-Danlos Syndrome, Marfan Syndrome, and Loeys-Dietz Syndrome. Under the leadership of Jon Rodis, this coalition combines the expertise of patient advocates and those directly impacted by these conditions to provide essential resources and education.

Impact on Lives

Through research grants and seed funding for qualified researchers, the Connective Tissue Coalition drives vital research initiatives that aim to improve diagnosis and treatment options for individuals affected by these syndromes.

Why Your Donation Matters

Your support is crucial in enhancing the quality of life for individuals and families affected by connective tissue disorders. Contributions help sustain advocacy efforts and provide necessary resources.

Join the Cause

Make a difference today! Donate cryptocurrency or cash to the Connective Tissue Coalition and help elevate awareness and support for those living with connective tissue syndromes. Every contribution counts!