Usher Syndrome Coalition

Our Story

The Usher Syndrome Coalition is the only organization in the world dedicated to finding and supporting every individual and family living with Usher syndrome. By raising awareness and accelerating research, the Coalition bridges the gap between researchers and families.

Impact

Connecting a global community, the Coalition provides education, support, and resources to improve the quality of life for those affected by Usher syndrome.

Why Donate?

Your donation helps support vital research, community building, and educational resources for families affected by Usher syndrome, fostering hope for future treatments.

Get Involved

Join the fight against Usher syndrome by donating today! Your contribution, whether in cryptocurrency or cash, can make a significant difference in the lives of individuals and families affected by this condition.