Our Story
Founded in 2013 by Billy “Joey” Rowe, Chiari Fund is dedicated to supporting individuals afflicted by Arnold Chiari Malformation (ACM), Tethered Cord Syndrome (TCS), Syringomyelia (SM), Ehlers Danlos Syndrome (EDS), Craniocervical Instability (CCI), and other related disorders. Joey's personal journey with these conditions revealed a significant gap in the community's access to necessary care. Chiari Fund was established to ensure that financial barriers do not prevent anyone from receiving the best medical attention available.