CCHS Network

About CCHS Network

The CCHS Network is dedicated to raising awareness and providing support for individuals affected by Congenital Central Hypoventilation Syndrome (CCHS), a rare genetic disorder that impairs the body's ability to control breathing during sleep. This organization strengthens patient and professional communities, provides education and advocacy, and supports research to improve treatment options for CCHS patients.

Impact

Through global advocacy and education, the CCHS Network has mobilized efforts to connect families and foster research initiatives, significantly improving health outcomes for individuals with CCHS.

Why Donate?

Your donation to the CCHS Network supports vital advocacy for the CCHS community, funding for groundbreaking research initiatives, and educational resources for families and patients affected by this life-threatening condition.

Get Involved

Join the fight against CCHS by donating today! Your contribution, whether in cryptocurrency or cash, can make a significant difference in the lives of those affected by this rare disorder. Together, we can create a brighter future for CCHS patients and their families.