Beyond Batten Disease Foundation

Our Story

Beyond Batten Disease Foundation was founded in 2008 by Charlotte and Craig Benson after their daughter Christiane was diagnosed with juvenile Batten disease. This rare neurodegenerative disorder lacks sufficient treatment options, prompting the creation of the foundation to drive research and awareness.

Impact

With over $35 million invested in research, the foundation has significantly advanced the understanding and treatment of juvenile Batten disease, improving lives for affected children and their families.

Why Donate?

Your contributions support critical research and innovative projects aimed at finding a cure for this terminal condition, directly impacting families facing this devastating disease.

Get Involved

Join the fight against Batten disease by donating today. Your support can help fund groundbreaking research and provide hope to families in need. Whether through cryptocurrency or cash, every contribution makes a difference!