BDSRA

About Batten Disease Support and Research Association

The Batten Disease Support and Research Association (BDSRA) is a nonprofit organization committed to improving the lives of those affected by Batten disease, a rare and fatal neurological disorder. Founded by families impacted by this devastating condition, BDSRA serves as a beacon of hope, providing essential resources, support, and advocacy for families navigating the challenges of Batten disease.

Our Mission

BDSRA's mission is to support families affected by Batten disease through education, advocacy, and funding for research aimed at finding effective treatments and ultimately a cure. The organization is based in the United States and works tirelessly to raise awareness about this rare disease, which primarily affects children.

Impact of BDSRA

Since its inception, BDSRA has made significant strides in supporting families and advancing research. The organization provides a wealth of resources, including educational materials, family support programs, and access to clinical trials. BDSRA also collaborates with researchers and medical professionals to promote innovative research initiatives that aim to unlock the mysteries of Batten disease.

Support for Families

BDSRA understands the emotional and financial toll that Batten disease takes on families. Through various programs, the organization offers support groups, informational webinars, and one-on-one consultations to help families cope with the challenges they face. BDSRA also provides grants to families to assist with medical expenses and other needs.

Advancing Research

Research is at the heart of BDSRA's mission. The organization funds critical research projects that explore potential treatments and therapies for Batten disease. By partnering with leading researchers and institutions, BDSRA is helping to pave the way for breakthroughs that could change the lives of those affected by this condition.

Why Donate to BDSRA?

Your contributions to BDSRA can make a profound difference in the lives of families affected by Batten disease. Donations help fund vital research initiatives, support programs for families, and raise awareness about this rare disease. Whether you choose to donate cryptocurrency or cash, your generosity will directly impact the fight against Batten disease.

Make a Lasting Impact

Every donation, no matter the size, helps BDSRA continue its mission. By supporting BDSRA, you are joining a community dedicated to finding a cure and providing hope to families in need. Your contribution can help fund research that leads to new treatments, support families facing the challenges of Batten disease, and raise awareness to ensure that no family faces this journey alone.

Join the Fight Against Batten Disease

Donate today to help BDSRA continue its vital work. Together, we can make a difference in the lives of those affected by Batten disease. Your support is crucial in the fight for a cure.