Barth Syndrome Foundation

About Barth Syndrome Foundation

The Barth Syndrome Foundation is committed to saving lives through education, research, and treatment advancements for Barth syndrome, a serious genetic disorder affecting primarily males.

Impact of the Foundation

BSF has significantly contributed to research and treatment options, including a recent FDA advisory committee recommendation for Elamipretide, a potential treatment for Barth syndrome.

Why Donate?

Your donations support vital research and community resources for families affected by Barth syndrome, aiding in the development of effective treatments and a potential cure.

Get Involved Today!

Join the fight against Barth syndrome by donating cryptocurrency or cash. Your contribution can make a difference in the lives of those affected by this condition.