Our Story
The Bardet Biedl Syndrome Foundation is dedicated to connecting families and sharing vital information about Bardet Biedl Syndrome (BBS). This nonprofit organization fosters a supportive community for those impacted by BBS.
EIN: 46-3343666 · West Chester, PA
The Bardet Biedl Syndrome Foundation is dedicated to connecting families and sharing vital information about Bardet Biedl Syndrome (BBS). This nonprofit organization fosters a supportive community for those impacted by BBS.
Over the past decade, significant progress has been made in diagnosing Bardet Biedl Syndrome accurately and promptly. Research has delved into the genetics of BBS, enhancing understanding of its molecular basis and potential treatments for retinal degeneration.
Your donations to the Bardet Biedl Syndrome Foundation directly support critical research and education initiatives. These funds empower families, physicians, and educators with the knowledge needed to improve care and outcomes for those affected by BBS.
Join the fight against Bardet Biedl Syndrome. Your contribution, whether in cryptocurrency or cash, can help transform lives and advance research. Donate now to support this noble cause!
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