EIN: 81-1592495 · La Jolla, CA
Born from the love and determination of a family seeking answers, ADCY5 Organization was founded by Gay and Steve Grossman after their daughter Lilly was diagnosed with ADCY5-related movement disorder (ADCY5-RMD). This journey has transformed into a global initiative, uniting families and driving research to improve the lives of those affected by this rare condition.
ADCY5.org supports families, clinicians, and researchers, fostering collaboration and funding efforts to advance treatment options for ADCY5-RMD.
Your contributions directly support vital research on the ADCY5 gene, ensuring that 100% of donations go towards finding treatments and a potential cure. Check with your employer about matching donations!
Join the fight against ADCY5-related movement disorder by donating cryptocurrency or cash. Your support can change lives and bring hope to families affected by this condition. Together, we can make a significant impact!
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