A Foundation Building Strength

Our Story

A Foundation Building Strength is the only 501(c)(3) organization solely dedicated to finding treatments for Nemaline Myopathy (NM), a rare muscle disease. The organization focuses on advancing research, providing information about care, offering family support groups, and creating opportunities for in-person interaction and education at conferences.

Impact

Over $6,479,640 invested in Nemaline Myopathy research, with 12 research studies funded throughout the United States and worldwide in 2022-2023. The organization has developed a Standard of Care Protocol for NM and funded the first CRISPR/Cas9 Gene Editing project of an NM gene (NEB).

Why Donate?

Your generous donation helps fund research into treatments and provide support for the Nemaline Myopathy community, making a significant difference in the lives of those affected by this rare disease.

Get Involved

Join the fight against Nemaline Myopathy by donating today! Your contribution, whether in cryptocurrency or cash, directly supports groundbreaking research and community initiatives. Together, we can build strength and hope for those affected by NM.